A friend of the family had a kid with one of those genetic motor function/neurological disorders I am talking about, the poor kid couldn't even move or speak, he was bound to a bed for 3 years since his birth he suffered as did that entire, extended family.
When the kid finally died it was probably a relief for him.
I am sorry if your religious sensibilities and those of a portion of this forum run counter to my disgust with that suffering and my desire to prevent it.
And here is a small problem, a very small one. I have met many times with such people, in fact I am a disabled person myself, hence my contact with them and it is constant. And according to what I know, what I saw myself, I will say one thing, it is the most heartless thing such a person can hear from a healthy person.
This thing can really kill, and they don't want to die. No, they want to live! They want to show that they too can, they want to have a chance to live. That's why they torture themselves by undergoing rehospitalization, heavy and expensive treatments. Man, every such person overcomes obstacles that don't exist for you and in fact are worth more than you think.
That's why I want to develop medicine, to find a way to help them and not to kill them because they suffer and suffocate... What are you talking about, man? Everyone suffers, and for some it's permanent. But I doubt this kid doesn't want to live and would be grateful that for "his" sake you took away his chance to live.
I can see that you can't understand, but what you think is a help, for them is no help at all, in fact, it's a bastard. In fact, you suffered by looking at him, because you didn't want to see him subconsciously, and what you said is an excuse for yourself to feel good about yourself. Or at least that's how I see it.